Well, we've learned one thing about our little boy - he likes to throw parties! He threw himself a huge birthday party the night he was born and invited all the NICU staff, cardiologists and surgeons. They got him a big ECMO machine as his birthday present - but Mommy is hoping to get rid of it soon. :) Then this morning, he thought he would throw another 4th of July party with his nurses, OR staff and Dr. Mascio. He just loves to entertain people I guess.
Luke has spent the rest of his first 4th of July getting lots of rest and getting rid of lots of fluid. Tonight, our nurses decided to move his head around and clean up his hair a little. He is looking so handsome the doctors will hardly recognize him during rounds in the morning! Turns out that his hair is actually brown and not black like we first thought (sorry Leah!) but it still beautiful. Once he was all rearranged, he opened his right eye and was finally able to look at Mommy and Daddy. It was the first time we had see his little eye since right after he was born.
Depending on how Luke does tonight, doctors may begin to gradually turn down his ECMO machine early in the morning during rounds. However, there is a possibility that they may give him another day and wait to challenge him on Tuesday. We are praying for an extra extra good night tonight and for the Lord's hand to be on Luke in the morning to give him miraculous strength to work that little heart on his own.
Benson and I can't get over how much we can love a little guy so much. If love could be enough to make that special heart work, we would already be home! However, we know the Lord is in control and we are waiting patiently on His timing for Luke's miracle to be revealed.