I also started packing for the hospital this weekend which was an overwhelming task in itself. I have no idea what to pack for the hospital in the first place, much less what to pack if we should be there for several weeks. By the end of the weekend, I was emotionally exhausted.
As strong as I am, there are moments when the reality of what is going to happen really hits me. I think its the fear of not knowing what to expect that hurts me the most. I absolutely hate that we have to go through this. I hate that in just a few short weeks our lives will never be "normal" again. I hate everything about HLHS. However, in those moments...I stop and realize that God is still God. He is still in control and He has promised us that He will never leave us. As much as I hate how broken my heart feels sometimes, I know that God has a purpose for it all.
I found this video today and it brought me to tears. It is the story behind the song "Before The Morning" -- which I hear on KLove almost every day. I heard this song for the first time not long after we found out about Luke's heart and it really ministered to me. It wasn't until today that I found out it was actually written about a boy with Hypoplastic Left Heart Syndrome. I hope you will watch it and most of all, that you will see how the Lord works through our pain and suffering to bring glory to the Father.